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The Fleeting Nature of Good Days
My daughter Bella was born 4 years ago with a very rare genetic disorder called Pontocerebellar Hypoplasia type 6 (PCH6), ...
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For more than a decade Courageous Parents Network, a nonprofit organization, has oriented, equipped and empowered those caring for children with a serious medical condition. We celebrate This Shared Journey: parents sharing their perspectives to support others and build community; clinicians sharing their expertise and commitment while learning from the insight and experience of families. Through these collaborations we aspire to build confidence that all are doing the very best they can for the child and family.
These Links of Courage have been made by generous donors in honor or memory of a loved one and in support of CPN's 10th Anniversary!
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We are a non-profit and are grateful for your financial support so families can share their experience and expertise to impact the course of care, both given and received.